Saturday, July 11, 2009

Walking the Halls at Doerenbecher

It is so easy so sink into self-pity when your child has cancer. It is so easy to say "why us?". It is so easy to get tunnel vision and forget that your heartache is not the only pain in this world.

Sometimes when I start to feel the quicksand coaxing my spirit down into that dark place, I walk the halls of the hospital.

I am reminded that I can talk with my son, I can touch him, I can hold him, I can hear his "I love you's", and I can have hope that we will beat this disease. We get to leave this place in a few days, even if we do have to return regularly for the next 18 months.

As I watched a Life Flight Helicopter land on the roof of the hospital, I was struck with a deep feeling of gratitude that my son, daughter, husband, or other family member was not on that flight. While our battle is long, we have time to build up our endurance for the long haul ahead.

The suddenness of the diagnosis, while still stinging, has become more of a dull ache in my heart. I count the days we have had our wonderful son since cancer first tried to rob Alex of his life. Each of those days is a precious gift that I would not trade for the world.

Since his diagnosis, we have celebrated another birthday, I have watched him learn to write his name, I have seen his imagination hard at work, and witnessed him catching his first fish.

Perspective is hard when your child is facing cancer. Walking the halls, and witnessing the strength of the other patients and their parents reminds me that we do not suffer alone, and that heartache comes in many different forms. It also reminds me to hug my children, and tell them I love them as often as I can . I hope this post reminds you to hug those you love too.


Fever/ANC Update

Low-grade fever today (under 100) - but with no change in his ANC, we won't be coming home on Sunday. We hope that the fever is gone for good, and that we just have to wait for the ANC to go up.

Come on White Blood Cells - grow, Grow, GROW!!!

Friday, July 10, 2009

Fever Update

102.5

Ugh... doesn't look like we will be going home on Sunday...

Dear Tessa-Lynn

Hi Sweet Cheeks, I miss you.

I'm so sorry that we have been away from you as much as we have these last 8 months. For half of your sweet life, your big brother has had cancer. We are fighting so hard to get him healthy again. We want you to grow up with him in your life. In order to make that happen, we have a whole lot of doctors appointments we have to take him to. Sometimes, he needs to stay overnight in the hospital, and Mommy and Daddy may have to stay overnight with him. Your brother wants to be home with you and us. He misses playing with you when he is here at the hospital.

I'm so glad we have your Grandma Diana and Grandpa Bob close by to take care of you when we are taking care of your brother. They, along with all the rest of your huge family love you so much!

You are quite the amazing little girl, and I hate missing even one minute of your day. Your smile is infectious, and your strong personality and independent spirit are so much fun to witness.

We still have another 18 months before your brother's treatment is done. By that time, you will be twice as old as you are now - almost 3 years old.

I want the time to fly so fast, so we can be done with Alex's treatment, but I also want it to slow down so I can enjoy watching you evolve from an adorable toddler, into a wonderful little girl.

I want you to know, that even while our hearts are aching over your brothers battle with cancer, we are loving you dearly, and missing you deeply every time we are apart.

Loving you,

Mommy & Daddy

Fever Back Up & ANC Down

101.5 Fever

0 ANC

There is nothing else to say...