As we wait for Alex's numbers to rise so he can start the last phase of treatment, I have had some time to reflect on the last 8 months. It is amazing that only 8 months ago, our life turned into a living hell. Our world was turned upside down, and our hearts felt broken beyond repair. Eight months ago, we were sitting in a hospital room, reeling from a diagnosis that no parent should ever have to hear, and no child should ever have to endure.
Eight months later, we are recovering from the most intense phase of Chemo. A phase that wrecked us emotionally, and Alex physically.
While this next phase will be more routine, we must remain vigilant in our fight against this vile disease. We cannot become complaisant, as Alex starts to regain his "normal" physical appearance. We have another 18 months of treatment, with oral Chemo *every* single day, and Chemo through his PORT or in his spinal fluid once a month. We have been told that this phase, while not as intensive, is the *most* important phase in making sure that this cancer is gone for good.
Every week that we are delayed, feels like a reprieve for the cancer. I'm not a fan of those feelings. I know that these delays are built into the "road map" used to detail his treatment, but it doesn't make me feel any better. Tuesday, we go back to the clinic to hopefully start this new phase. I hope Alex's numbers are high enough to begin. This waiting is killing me...
Question, will the daily oral chemo cause him to loose his hair or have other side effects?
ReplyDeleteNope, he should start to regrow his hair - but it might be slower because of the chemo...
ReplyDeleteHe still will feel poorly at times - chemo sucks - but cancer sucks more!
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