Predictably, Alex is wiped out tonight. It always happens at this point in the medication cycle. His tummy hurts, and he is exhausted. It has become "routine".
It stinks.
During the day, he works so hard to be normal, and just play and "be" a 4.5 year old. All that fun just takes it out of him in the evening.
With his counts low, he has a double whammy this week.
I'm signing off so I can go snuggle with him on the couch, and try and make the stomach pain go away...wish me luck.
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I hate that this is your "new normal." I'm counting down the months with you until these awful treatments are a thing of the past. Stay strong, Mommy!
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