The Latest...

We had Alex's monthly Chemo appointment on Wednesday. Alex had a bit of a cold, and there was talk about holding off on his Lumbar Puncture for another month - due to an increased risk of aspiration while under heavy sedation.

Alex won the anesthesiologist over with his clear lungs, and incredible enthusiasm for his "sleepy milk" (the stuff they inject into his port to put him out).

So, he received his dose of poison to the brain, and poison in his veins, and got to miss a day of school.

We watched him closely for a fever, which never materialized. We were confident that even if he spiked on that evening, that we wouldn't have to go to the Emergency Department, since his ANC was 3,800! - WAY too high, but would keep him out of the In-Patient ward.

So, we are now back on steroids, and have had tears, and defiance, tender moments and back-talk...the roller coaster goes for another round. Today, I heard from Alex's kindergarten teacher that he was in tears, and just about inconsolable at the bus today to go home. By the time I saw him 20 minutes later he was happy. Two minutes after that, he was crying again...poor guy...

I can't wait until this ride comes to a full and complete stop, so we can get off, and find our balance again.