I have not been very consistent with my posts lately. As an intelligent woman, I understand that coincidences happen but emotionally, it feels like if I post when things are good, something bad will happen.
So, after some intense internal dialogue with myself, I realize that this is silly, and I need to share whether things are good or bad.
Today, Alex had clinic, and his creatinine level (kidney function) was higher than expected, so we need to work with him on drinking more during the day. We have a pump, and fluids that we can give him at night - but we don't want to rely on it.
Alex has always been a "sipper" - he hasn't ever "chugged" anything. Getting him to drink close to 60 ounces a day is honestly exhausting. We have to be on him all day long.
The good news is that the doctors are starting to taper his Tacrolimus (which is the anti-rejection medication)! This means, that if all goes according to plan, in a few months, we can discuss going back to school!
I am beyond excited about this - it is a huge milestone, and to get to it before day +100 is amazing.
Now, I'm off to pester my son about drinking again!
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Yayayay!! I'm always happy to hear the good news, and I can empathize with the "not wanting to jinx yourself" mentality. As logical as we are, it's sometimes hard to ditch some of those superstitions. :-) It doesn't help that Alex was diagnosed with his new cancer EXACTLY at the time we were all celebrating his beating the last one. I think that what you're feeling (whether PTSD or something similar), you can't help but let the superstitions get you sometimes. It's good to remember to celebrate the good stuff, though. I'll remind you of that whenever I can! Yay for a great day full of great news...and hoping for lots more to come!
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Erin