We are having much more success with getting Alex to take his oral chemo this time around. While we are still crushing it up and mixing it in mango sorbet, we are experiencing a lot less resistance to the ingestion of such a funky mixture.
Each week, we are "crushing" the pills a little less, with the idea that he will learn to "swallow" the larger pieces. The end goal, of course, is to get him to swallow pills. Some days it would be only one large one. Other days, it is 1 1/2 large pills, 11 1/2 small pills - a total of 13 over the course of the day.
Alex goes back for counts on Monday, to see if they need to adjust the dosage of the Mercaptapurine. His next "chemo" appointment isn't until the 31st of August. At that time, he'll receive more Vincristine through his port, and may or may not receive another LP of Methotrexate into his spine (depending on counts on Monday).
We survived the 5 days of steroids, and now have our son back from the steroid-induced craziness that is now invading this household every 4 weeks for the next 18 months.
Alex is feeling really good right now, and is in great spirits. We take it day by day, and treasure these "good days"!
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I have actually learned it is OK when you are quiet. When you are queit Alex is home sleeping in his own bed, taking baths with his sister and having "normal" days with mom and dad. It is when you have a lot to post that worries me.
ReplyDeleteBTW,and off the beaten path, I have looked at Alex's 5-6 years on the photo album site and his isn't coming up with Pics; just saying 999 of 999.
Sorry, 4-5 years on the photo sight. I guess I am skipping a year. No problem though; we are fast forwarding to a life back to noramalacy for all for of you. ;D
ReplyDeleteSounds like things are going well-glad that you all had a good time at camp as well. I love mango sorbet. ;)
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