Wednesday, June 1, 2011

Finally

Finally, and hour and a half late, Alex was given his "sleepy milk" (propofol), and had his spinal tap (with methotrexate) and bone marrow aspiration.

Here is an update of what we know (and don't know) so far.

1) Days in Hospital: 15 days
2) Mass in lung: No word yet
3) C-Diff: End of 10 day treatment today, however, we will be in isolation for two more days "just to be sure"
4) Pain: Still needs Morphine and Oxycodon combination. Off Tylenol.
5) Fever: No fever for two days!
6) Chest Tube: Still on suction. Won't go to seal until tomorrow at the earliest.
7) Bone Marrow Biopsy: Just completed the aspiration. We won't know anything for a few days
8) Bone Marrow Transplant: No update on matches lately. Our coordinator is working on the 10 best of the best for marrow, and 2 best of the best for cord blood.
9) Chemotherapy: Just received methotrexate today in his spinal fluid. Once we know what the results of the bone marrow aspiration, we will know what the next step is with chemo.
10) Homework: Trying to get it done, real lack of motivation on his part... understandably
11) Mood: Depends on the hour, overall theme is get me the hell out of here.
12) Food: Not eating a lot.
13) Eric: Working at the office twice a week, working from the hospital three days a week. Sleeping in the hospital room every other night
14) Sara: Trying to keep Alex from climbing the walls. Sleeping at the hospital every other night.
15) Tessa: Has either Mommy or Daddy at home every night. Spending her days either at school, or with Grandma Diana, or Gamma Carol.
16) Entertainment: Disney Channel is beyond annoying (except Phineas and Ferb). There are some really weird cartoons on Cartoon Network.
17) Chemo Pal: Alex really likes his new Chemo Pal...we do too! Thanks for being there for Alex, Reid!

2 comments:

  1. Thank you for the update. I wish there were something I could do to help you guys. If you think of anything at all, big or small, please don't hesitate to ask. I am looking forward to the day that all four of you can sleep under one roof again. To be home, and comfortable, and resting... I'm sure you're looking forward to that day, too. Much love! xxoo

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  2. Great update! Well at least to know where things stand! Hopefully there will be some news soon as to Marrow and Chemo. We are anxiously awaiting to hear you guys are cleared to go home!!!

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