Tuesday, November 18, 2008

Home at last and success with Prednisone!

Yesterday was our last day in the Pediatric Oncology unit. We received tons of instruction on how to flush his PICC each day, and which medications to give when, and a list of appointments to come back.

We also saw the social workers, who helped us fill out more forms for different organizations that can help us financially, and emotionally.

We were also instructed on Alex's "counts" - the numbers derived from his blood draws.

We also had success with dosing the Prednisone to Alex when we got home. No more chocolate for him - we gave it to him in "Moose Tracks" ice cream. He still didn't like it very much, but he didn't gag! We had the same success this morning...we are all feeling better about it.

The doctors cannot feel the mass in his neck anymore (yay!), and say he is responding well to treatment.

I'm so grateful for the red wagon we received - it took two trips with the wagon overflowing to get all our stuff out of the hospital. Then, with the balloons, and Alex, we ended up having to tie the wagon to the roof of the car to get home!

We have received so many wonderful gifts, notes, emails, and voice mails from people all over the country. If we haven't replied directly to you, let me take this opportunity to say "Thanks!"

Every day, we are one day closer to declaring Alex "cured"

2 comments:

  1. I pray for you and think of you every day! I'm glad that you are all back at home and I hope that his success will continue and grow!
    Love, Lisa

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  2. Alex,
    You are so awesome!!! I hope you liked the rice pudding!
    Love Lakyn

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