About one this morning, Alex's fever returned - 101.2. Another dose of Tylenol was given, and his fever hasn't returned since (crossing fingers and toes).
Around seven this morning, the nurse noticed that Alex's heart rate was a little low, and they hooked him up to an EKG to monitor his heart rate. The test came back normal. Then, a little later, someone came in asking about a respiratory treatment, which had the nurse and Eric confused. After further research, it was determined that there is another Alex with almost the same last name on the same floor on the other wing, and the treatment was for him. Needless to say, both boys now have big red flags on their accounts to double check the last name...
We got Alex's ANC results from last night, which were only 60 - yes only 60 - so no improvement there yet - ugh.
The doctors came in, and said the first swab came back negative (respiratory infection), and we are now waiting for the flu swab results, which won't come back until tomorrow. So, we are all still quarantined to the room for at least another day.
They are still planning on going forward with Alex's Vincristine Chemo and Steroids tomorrow. We are on hold again for the Methotrexate and Mercaptapurine. Alex's blood work to check for the gene that might be messing with his metabolism rates of the Mercaptapurine will be sent out tomorrow, and takes a few weeks to come back (unlike on TV, where genetic testing takes only hours). Our team of doctors will be meeting on Monday to discuss dose changes for Alex to make sure that we keep these life saving drugs running through his veins, without it causing dramatic drops in his counts.
So, what we know is that we are stuck here for the next 48 hours, his counts haven't improved yet, and we aren't sure what is causing the ANC to stay so low.
I also know it is a great day to go outside and play - please step outside and breath some nice fresh air for Alex - he can only gaze at the day through his hospital window...
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